Key takeaways
- Preparing questions and staying organised can help you make the most of appointments with your loved one’s healthcare team
- Don’t hesitate to ask difficult or personal questions, and to follow up if needed. Healthcare professionals are there to support you and your loved one.
- Bringing a third person along for support and taking notes can ensure you remember important information and feel more confident in making decisions
- One of the most important aspects of treatment discussions is understanding the goal of the recommended treatment
Supporting someone through cancer treatment can be overwhelming, but being prepared can make a significant difference. As a carer, your role in communicating with the healthcare team is crucial. Start by planning your questions before appointments; writing them down ensures you cover all concerns. During the appointment, take notes or ask if you can record the conversation (with permission) to help remember important details.
Bringing a third person with you, whether a family member or a professional advocate, can provide additional support and help in understanding the information shared. It’s okay if you don’t ask all your questions at once; you can follow up later via phone or email. Your loved one’s key worker, usually a clinical nurse specialist, is a vital point of contact for ongoing concerns.
Remember, no question is too small or too personal. Healthcare professionals are there to help and are accustomed to addressing a wide range of concerns, from treatment options to managing side-effects. Asking about the goals of treatment, possible side-effects, and available support resources can empower you and your loved one to make informed decisions.
For more in-depth information and additional resources on how to engage with your loved one’s healthcare team, visit Macmillan Cancer Support.
While we have ensured that every article is medically reviewed and approved, information presented here is not intended to be a substitute for professional medical advice, diagnosis, or treatment. If you have any questions or concerns, please talk to one of our healthcare professionals or your primary healthcare team.
References:
‘Questions to ask your healthcare team,’ Macmillan.org.uk, July 2023, https://www.macmillan.org.uk/cancer-information-and-support/treatment/your-treatment-options/questions-to-ask-your-healthcare-team
‘Helping Your Loved One Make Treatment Decisions,’ cancersupportcommunity.org, Feb 2021, https://www.cancersupportcommunity.org/sites/default/files/fsac/Making_Treatment_Decisions_Caregivers_Booklet.pdf